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What You Can Learn from 7 Theme Fusion Success Stories
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Paediatric Research: DEEP Project, Showcasing its Results at EFGCP Conference
Mariagrazia Felisi, Chair of the TEDDY Network and Clinical Projects Director at CVBF, delivered a presentation on the DEEP (DEferiprone Evaluation in [...]
Pharmacogenomics and Toxgnostics in Personalized Medicine on EJP RD’s MOOC
Dr. Marios Phylactides, a distinguished researcher from The Cyprus Institute of Neurology and Genetics, has made significant contributions to the European [...]
OMICS Technologies in Personalized Medicine on EJP RD’s MOOC
In a significant contribution to the European Joint Programme on Rare Diseases (EJP RD) “Innovative Therapies and Personalized Medicine for Rare Disease” [...]
Our CEO to Present at Prestigious Global CardioVascular Clinical Trialists Workshop
We are proud to announce that Donato Bonifazi, CVBF’s CEO and Member of the Board of Directors of the Teddy [...]
Innovative Therapies and Personalized Medicine for Rare Diseases: MOOC in Full Swing
As we are in full swing of the facilitation window in September, we're excited to share an update on the [...]
Newsletter, June 2024
Dear Reader, Imagine a world where every child, regardless of their condition, has access to safe, effective, and child-friendly [...]
RACE Act accelerates Paediatric Oncology Drug Testing, FDA reports
The U.S. Food and Drug Administration (FDA) has reported a significant increase in the number of planned studies to [...]
CVBF’s Researchers Publications in Paediatric Data Standardization
Recent publications from researchers affiliated with the CVBF consortium underscore our commitment to advancing efforts in paediatric data standardization. The paper by Mariagrazia Felisi, Fedele [...]
DEEP-2 Lay Summaries for Children and Teens
Thanks to the collaboration with the TEDDY Network, CVBF has published two new lay summaries explaining the key findings of the DEEP-2 paediatric clinical [...]
CVBF’s New Video Offers Insights into Multinational Rare Disease Clinical Trials
We are proud to share with you the newly released informative video detailing the challenges and strategies involved in conducting the DEEP- 2 clinical trial [...]
CVBF at the ERAMET Kick-Off Meeting
Namur, Belgium - CVBF participated in the kick-off meeting of the ERAMET project on March 4-5 in Namur that was organized by the University of [...]
29 February 2024, Rare Disease Day
29 February is Rare Disease Day, falling on the rarest date of the calendar. This is an opportunity to raise awareness that over 300 million [...]
CVBF’s Scientific Director to Speak at Rare Disease & Orphan Drugs Congress
Giovanni Migliaccio, Scientific Director of CVBF and member of the Board of Directors of the European Paediatric Translational Research Infrastructure (EPTRI), will be speaking at [...]