Consorzio per Valutazioni Biologiche e Farmacologiche – Dege e shoqerise se huaj, Albanian Branch Office in collaboration with the TEDDY Network (European Network of Excellence for Paediatric Clinical Research) and University Hospital Center Tirana “Mother Teresa”, Service of Paediatrics), promoted the first YPAG (Young People Advisory Group) in Albania, named KIDS Albania.
KIDS Albania is the new 20th chapter of iCAN (International Children’s Advisory Network) and together with the other 19 YPAGs across the world will work to improve paediatric medicine research by providing children and their families a voice in health, research, medicine and innovation.
The event has taken place on 15th September 2017 at the University Hospital Center “Mother Teresa”, Service of Paediatrics, in Tirana. It was attended by young patients, healthy youngers and their parents willing to advocate children in healthcare especially participants in clinical trials.
The mission of KIDS Albania will be to raise awareness about the importance of children’s involvement in the clinical trials, to support researchers in the design of clinical trials and in defining priorities for future research.
During the event, the main goals and activities of the YPAG were presented with a specific focus on what the KIDS Albania will concretely do and its mission. Some informative videos on clinical research were showed as well as the age-tailored informative materials prepared by CVBF during the clinical trials were presented to give them the idea of some practical activities they could be involved in.
All the videos and the informative materials are available at this link:
https://www.pediatricpain.eu/patients-and-families/
More information on the KIDS Albania are available here: https://www.teddynetwork.net/kids-albania/.
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