This 28 February is Rare Diseases Day (RDD), an opportunity to celebrate people living with rare diseases and to raise awareness of these disorders.

Donato Bonifazi, our CEO, will attend, as a speaker, the convention Rare Cancers: Challenges and Opportunities, organized by the the Fondazione per la Ricerca Farmacologica Gianni Benzi on February 23, at the IRCCS Istituto Tumori Giovanni Paolo II in Bari.

Among the stakeholders involved in this conference, CVBF has a long experience in clinical research on rare diseases, in particular in rare cancers.

Rare cancers are a heterogeneous group of more than 200 types of neoplasms, often associated with rare non-oncologic diseases caused by genetic alterations. Their prognosis, compared with more frequent forms of cancer, is worse, caused by late diagnosis and scarcity of therapies. Because of their complexity, the treatment of rare cancers requires highly professionalism, multidisciplinary clinical management, national and international network collaboration. This conference, therefore, aims to emphasize the importance of cooperation, improve the organization of care and promote research.

More information about this news is available here.

The TEDDY Network is organizing a meeting dedicated to rare diseases, which will be held in hybrid mode on Friday 24 February. Manika Kreka, Medical Director of the Albanian CVBF’s branch, will talk about rare diseases and particularly rare haemoglobinopathies with the TEDDY Kids and the Young Persons Advisory Group from Athens, Bari and Tirana.

More information about this news is available here.