CVBF was among the participants at the European Joint Programme on Rare Diseases (EJP RD) Final Conference, held on 27-28 May 2024 in Bari, Italy. The event brought together experts, professionals, and advocates involved in rare disease efforts from around the world.

The two-day conference provided a platform for discussing challenges and advancements related to rare diseases. Attendees had the opportunity to share insights, explore solutions, and facilitate collaborations aimed at improving research and care for those affected by these conditions.

As an organization supporting initiatives that drive rare disease research, collaboration, and improved patient care, CVBF’s presence at the conference aligned with its mission. Representatives from the consortium contributed to panel discussions, sharing their expertise on various aspects of rare disease research and patient care.

The conference provided an opportunity to connect with other organizations, researchers, clinicians, and patient advocates working in the rare disease field. Such connections foster knowledge-sharing and lay the groundwork for future collaborations, which can drive progress in addressing the challenges posed by rare diseases.

Our participation underscores our commitment to innovation, collaboration, and patient-centred approaches in the fight against rare diseases. We continue our efforts to push boundaries and bring hope to those affected by these often-overlooked conditions.