Dr. Éloïse Gennet, junior professor in European health law at Aix Marseille University, CNRS, DICE, CERIC, Aix-en-Provence, France, has contributed valuable insights to the European Joint Programme on Rare Diseases' (EJP RD) latest MOOC on "Innovative Therapies and Personalized Medicine for Rare Disease.", led by CVBF. In her comprehensive module, Dr. Gennet addresses the [...]
Prof. Angelo Paradiso, a leading figure in biobanking and former Scientific Director of Istituto Tumori, National Cancer Research Center in Bari, recently shared his expertise in the European Joint Programme on Rare Diseases' (EJP RD) MOOC on "Innovative Therapies and Personalized Medicine for Rare Disease.", led by CVBF. With three decades of experience in [...]
Prof. Alessandro Aiuti, Deputy Director of Clinical Research at San Raffaele Telethon Institute for Gene Therapy (SR-TIGET), recently contributed his expertise to the European Joint Programme on Rare Diseases' (EJP RD) MOOC on "Innovative Therapies and Personalized Medicine for Rare Disease.", led by CVBF. Drawing from over two decades of experience, Prof. Aiuti shared [...]
Mariagrazia Felisi, Chair of the TEDDY Network and Clinical Projects Director at CVBF, delivered a presentation on the DEEP (DEferiprone Evaluation in Paediatrics) project during Session 3 “Examples of successful EU-funded paediatric projects” on Day One, of the EFGCP "Better Medicines for Children" Conference in Brussels. The DEEP project represents a significant milestone in paediatric [...]
Dr. Marios Phylactides, a distinguished researcher from The Cyprus Institute of Neurology and Genetics, has made significant contributions to the European Joint Programme on Rare Diseases (EJP RD) “Innovative Therapies and Personalized Medicine for Rare Disease” Massive Open Online Course (MOOC), led by CVBF. His involvement comprisesa presentation on pharmacogenomics and toxgnostics, crucial in [...]
In a significant contribution to the European Joint Programme on Rare Diseases (EJP RD) “Innovative Therapies and Personalized Medicine for Rare Disease” Massive Open Online Course (MOOC), Dr. Eleni Katsantoni, an Investigator and an Assistant Professor at the Biomedical Research Foundation of the Academy of Athens, has contributed with insights into the realm of personalized [...]
The landscape of healthcare is rapidly evolving, with big data and machine learning at the forefront of this transformation. In the EJP RD's "Innovative Therapies and Personalized Medicine for Rare Diseases" MOOC, led by CVBF, experts Dr. Claudia Pansieri, Health Research Project Manager at CVBF and Dr. Giorgio Reggiardo, Head of Biostatistics Unit at [...]
We are pleased to announce that our CEO, Donato Bonifazi, a permanent member of the Advisory Group of the ACT EU Multistakeholder Platform (MSP AG) will participate in the upcoming Accelerating Clinical Trials in the EU (ACT EU) Multi-Stakeholder Platform Annual Meeting, as representative of TEDDY, the European Network of Excellence for Paediatric Research. The [...]
In the realm of rare disease research and education, collaboration and knowledge sharing are paramount. Giovanni Migliaccio, the CVBF’s Scientific Director and a member of the European Paediatric Translational Research Infrastructure (EPTRI) Board of Directors, also a distinguished expert in Advanced Therapy Medicinal Products (ATMPs), has recently made significant contributions to a crucial educational [...]
We are proud to announce that Donato Bonifazi, CVBF’s CEO and Member of the Board of Directors of the Teddy European Network of Excellence for Paediatric Research, will be participating in the upcoming Global CardioVascular Clinical Trialists (CVCT) Workshop, a high-level gathering of cardiovascular experts from around the world. The event is scheduled for 9-11 [...]
